Havasupai Tribe v. Arizona State University
E941922
Havasupai Tribe v. Arizona State University is a landmark legal case involving the misuse of Indigenous DNA samples in genetic research, which raised major ethical and legal questions about informed consent and tribal sovereignty over genetic material.
Statements (55)
| Predicate | Object |
|---|---|
| instanceOf |
human subjects research controversy
ⓘ
legal case ⓘ research ethics case ⓘ |
| alleges |
breach of fiduciary duty
ⓘ
fraud ⓘ intentional infliction of emotional distress ⓘ lack of informed consent ⓘ misrepresentation of research purposes ⓘ negligence ⓘ unauthorized secondary use of samples ⓘ violation of civil rights ⓘ |
| aroseFrom |
collection of blood samples from Havasupai tribal members
ⓘ
diabetes research project with the Havasupai Tribe ⓘ use of samples for studies beyond diabetes ⓘ |
| concerns |
Indigenous DNA samples
ⓘ
cultural harm ⓘ data ownership ⓘ genetic research ⓘ group harms in research ⓘ human subjects research ⓘ |
| defendant |
Arizona Board of Regents
NERFINISHED
ⓘ
Arizona State University researchers ⓘ |
| involves |
Arizona Board of Regents
NERFINISHED
ⓘ
Arizona State University NERFINISHED ⓘ Arizona State University researchers ⓘ Havasupai Tribe NERFINISHED ⓘ |
| jurisdiction |
Arizona
NERFINISHED
ⓘ
United States of America ⓘ
surface form:
United States
|
| legalOutcome | settlement ⓘ |
| legalSignificance |
became a key case in Indigenous research ethics discourse
ⓘ
highlighted need for specific informed consent for genetic research ⓘ influenced institutional review board practices ⓘ raised questions about ownership of genetic material ⓘ used as a teaching case in bioethics and law courses ⓘ |
| mainSubject |
informed consent in genetic research
ⓘ
misuse of DNA samples ⓘ privacy of genetic information ⓘ research ethics with Indigenous communities ⓘ scope of consent for secondary research use ⓘ tribal sovereignty over genetic material ⓘ |
| plaintiff | Havasupai Tribe NERFINISHED ⓘ |
| relatedTo |
Indigenous data sovereignty
ⓘ
community-based participatory research ⓘ genomic data governance ⓘ tribal sovereignty ⓘ |
| secondaryUseIncluded |
inbreeding studies
ⓘ
other genetic studies not consented to by the tribe ⓘ population migration studies ⓘ schizophrenia research ⓘ |
| settlementIncluded |
monetary compensation to Havasupai Tribe
ⓘ
restrictions on future use of samples ⓘ return of DNA samples ⓘ support for health and education initiatives for the Havasupai Tribe ⓘ |
| timePeriod |
1990s
ⓘ
2000s ⓘ |
Referenced by (1)
Full triples — surface form annotated when it differs from this entity's canonical label.