Office of Rare Diseases Research

E93883

U.S. federal program government office

The Office of Rare Diseases Research is a U.S. government program that coordinates and supports research, information, and collaboration efforts focused on rare diseases.

Aliases (1)

Rare Diseases Clinical Research Network ×1

Statements (50)

Predicate	Object
instanceOf	U.S. federal program → government office →
abbreviation	ORDR →
collaboratesWith	Centers for Disease Control and Prevention → U.S. Food and Drug Administration → academic researchers → industry partners → other NIH institutes and centers → patient advocacy groups →
country	United States →
establishedBy	U.S. Congress NERFINISHED →
establishedInPeriod	1990s →
field	biomedical research → rare diseases → translational research →
focusesOn	clinical trials for rare diseases → natural history studies of rare diseases → patient engagement in rare diseases → rare disease information dissemination → rare disease research coordination → rare disease research infrastructure →
hasMission	to coordinate and support research on rare diseases → to foster collaboration among rare disease stakeholders → to provide information on rare diseases →
language	English →
legalBasis	Rare Diseases Act of 2002 →
locatedIn	Bethesda, Maryland NERFINISHED →
movedTo	National Center for Advancing Translational Sciences →
movedToYear	2011 →
operatedBy	National Institutes of Health →
parentOrganization	National Institutes of Health → U.S. Department of Health and Human Services →
partOf	National Center for Advancing Translational Sciences →
previouslyPartOf	Office of the Director of the National Institutes of Health →
provides	online information resources on rare diseases → resources for patient organizations → support for rare disease research networks → tools for rare disease registry development →
regulates	no, it is primarily a coordinating and supporting office →
sector	public health →
supportsProgram	Genetic and Rare Diseases Information Center → Rare Diseases Clinical Research Network → Rare Diseases Registry Program → Toolkit for Patient-Focused Therapy Development →
targetAudience	biomedical researchers → families and caregivers of rare disease patients → health care professionals → patients with rare diseases → policy makers →
website	https://rarediseases.info.nih.gov →

Referenced by (2)

Subject (surface form when different)	Predicate
National Center for Advancing Translational Sciences →	hasPart
National Center for Advancing Translational Sciences ("Rare Diseases Clinical Research Network") →	operates